The Silence Of Snow

It was great to see & hear BBC News discussing the governments plan to allow sharing of medical information with a view to extending clinical trials to more and more patients. Both Dr Chris Harrison, and Professor John Radford from The Christie were featured on both BBC 5Live and BBC TV News respectively. This is good, not just because it highlights the great work done with clinical trials at The Christie, but because it’s yet another sign of the end Londoncentric news we have become used to over the years. For far to long, news reports have been based around the South East, in most circumstances totally irrelevant if you live north of the Watford Gap. This change alone justifies the BBC’s moved to Media City, Salford. At last the views and opinions of the great north are being considered. I have nothing against the work being carried out at the London hospitals, St Barts is a world renowned cancer centre but for far too long the work of The Christie has, in general, been ignored by the media, despite it being the leading cancer hospital in Europe. On the issue of the announcement itself, this can only be good news, not just for cancer patients, but other diseases where new drugs are being trialled all the time. This does not threaten anyone’s privacy, shared information can only benefit scientific breakthroughs, giving drug companies and researchers more information and data on which to base their studies. Regular readers of my blog will know how disappointed I was to have been deemed unsuitable for a particular drug trial to which I had been invited. But this demonstrates the safeguards that are already in place. If a drug is not going to be suitable or beneficial to a particular patient, then the patient wont be subjected to the trial. I am far happier that the doses originally earmarked for me, will be of benefit to another patient.

My recovery continues, albeit with a few stumbles. I was far too optimistic to believe I could handle more solid food. A simple home made macaroni cheese caused me so much grief. Another sleepless night is not a price worth paying. My diet should be consisting of all things not normally good for you. White bread, white pasta, white rice, potato (I didn’t think I needed to add the ‘white’ to that one) , but my digestive system is just not handling it. I’m longing for a lasagne, craving for a curry and would fight for a juicy fillet steak. For the first time in four months I’m missing my food, just at a time when TV adverts and programmes are full of the delights of festive eating. For a few hours I was looking forward to a night out on Friday, until I learned it would begin with a meal at a local Indian restaurant. I could not even stand the smell of curry until a few years ago, when M educated me into the delights of good Indian food. I went from loathing to loving Indian food in a matter of a few weeks, but it’s really not advisable for me at the moment. Despite my cravings my body could not handle it. I might have joined them for a drink afterwards, but despite trying to convince myself of the benefits, I know by that time of night I’m going to be exhausted. I’m thinking to myself I should have more energy by now, but then remind myself it’s only a week since finishing radiotherapy. There is a delusion that not going to the hospital is going to make me bound with energy, it’s not.

Tuesday saw the first dusting of snow this winter, a taster for what is predicted for the end of the week. Gale force winds and heavy snow could make life interesting. Snake pass has already been closed for 2 out of the last 3 days, and the temperature has certainly dropped a fair few degrees. So much so that I have put a heater and thermostat into the outbuilding where my washing machine is, to prevent it freezing up as it did last winter. There were at least 4 snow showers during the early hours of Tuesday. Somehow, the silence of snow always manages to wake me. Not that it takes a lot to keep me awake at the moment. As it happens, Wednesday night has been very quiet. The lull before the storm. Once again I’ve been awake most of the night, and once again I’m heading for bed as the rest of the world awakens, in the hope I’ll be able to catch up on a few hours sleep. Maybe today I’ll return to some sort of normality.

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If you have any concerns about bowel cancer, or just want more information or check cancer rates in your area you can find all the information advice and help you need here. www.beatingbowelcancer.org

 

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This entry was posted in Beating Bowel Cancer, Bowel Cancer, Cancer, chemotherapy, Drug trials, Health, Manchester, Oldham, politics, radiotherapy, Saddleworth, snow, The Christie. Bookmark the permalink.

1 Response to The Silence Of Snow

  1. Jim says:

    Chris,

    It’s good to read your news. I hope you’ll be able to face some mince pies by Christmas.

    Jim

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