Normal Service Will Resume Shortly

Now then, where were we? Before we were so rudely interrupted The longer the absence has gone on the harder it has become to rectify. If thought recognition software were available I’m sure I’d have dealt with this ages ago, but alas I haven’t and I’m left in the position now that I have to just get it over with and blurt it out. No planned lead up, fanfare, comical introduction or musical distraction. At least this way it may buy me a bit more time to work on the what happened in three or so months since I last published my inner thoughts. Oh don’t get me wrong, I’ve written them, many many times, scrapped them, gone through all the headaches, heart aches (is this a bit strong) and countless reams of paper screwed up and thrown across the studio floor. Yeah it is laying it on a bit thick, so I’ll just go for it…and here it is!

Two weeks ago I was given the not unexpected news that my disease is now regarded as being terminal. Results of a recent CT scan show further progression of the cancer and all curative treatment has ceased. Part of the problem of me updating this blog has been the constant changes both to treatment and it’s outcome, and in effect, the chemotherapy that has been so cruel to me this time, has had no beneficial effect and ceases herewith. In addition to the tumours we already knew about on my liver, and the ‘suspect’ areas on my lungs, further disease has been detected on my adrenal gland (back of kidney) right lung, new tumours on my liver, and a single tumour in the pleural layer of my left lung. It is the latter that is likely to cause me most problems and will probably prove to be the final nail. It has certainly caused me considerable chest pain for the last three months, and if nothing else, I’m pleased that it has been possible to identify the cause of that pain. Although the tumour itself may not be treatable, pain is, and for that reason I may undergo a period of radiotherapy in an attempt to relieve the symptoms. There is also the possibility of being considered suitable for inclusion on a further drugs trial, although I would emphasise, neither of these treatments is expected to perform any miracles, it is being regarded as palliative treatment only.

How long ?.. I hear you all scream. Don’t be embarrassed, it’s a natural question, it would be strange if you didn’t ask. It doesn’t mean I’m going to answer though. Anyone who has had a serious illness and comes into close contact with consultants and doctors will know they never give a straight answer, even when pushed. To be fair I have plenty of sympathy with them, it is being asked to play God and there are no rules or limits. We’re almost certainly talking in months. That could be a relatively short time, of even quite a long time depending on how you evaluate it. You get the picture. I have my targets and today they’re all still achievable. All the time I’m breathing and relatively well, I’m still alive, so let’s deal with it like that shall we.

All of a sudden I’m inundated with hospital appointments, not that I was being let off lightly before. More scans, tests, radiotherapy, this therapy that therapy, palliative team, Macmillan, district nurses…hey hold on I want to live my life ! What I’m saying is that I’m being kept busy, but I will get around to bringing my blog up to date with what happened over the summer. Glastonbury, Kendal, days out, days in the garden, gigs, concerts mini festivals, oh and a dislocated thumb. It seems inconceivable that I haven’t mentioned Glastonbury since I got back ! All will be rectified in due course.

It was not unexpected news when I got it. I’m not sure you can ever be prepared, but I knew we were reaching the end of the line when it was deemed the tumour on my liver was inoperable. Nonetheless, hearing such news throws you into a state of confusion until gradually the reality of it kicks in and you have to start to think of the practicalities of what is about to happen to you. It is a very strange situation to be in. I found it harder telling my Dad than my kids ! They were half prepared too, so no great shock to them. They have been wonderful and supportive throughout the entire progression of the cancer. My Dad on the other hand has become progressively forgetful and confused as he gets older. I see the frustration on his face as he realises he has forgotten why I am ill, and what has happened to me. But we will deal with it.

So that’s it ! I got up early on a Sunday morning and did it. I’m going to publish before I get distracted and start adding bits and pieces that are not really necessary at this moment. I know once I press publish I will feel a great sense of relief. It’s been a hard secret to keep.

Normal service will resume shortly.

Love to all xxx

 

Advertisements
This entry was posted in Be Loud Be Clear, Beating Bowel Cancer, Bowel Cancer, Bowel Cancer UK, Cancer, Cancer Research UK, chemotherapy, colonoscopy, Colorectal Cancer, CT scan, Drug trials, Festivals, Glastonbury, Glastonbury Festival, Health, Hepatectomy, Liver, Liver resection, Macmillan Nurses, Manchester, Metastatic Bowel Cancer, Palliative Care, radiotherapy, Stage 4 cancer, Steroids, The Christie, The Christie Charity and tagged , , , , , , , , , , , , . Bookmark the permalink.

4 Responses to Normal Service Will Resume Shortly

  1. It’s good to hear from you again Chris. I just wish it could have been better news. I am more or less in the same situation, but I must say my palliative team, consultant, nurses, hospice, etc couldn’t be better. They are truly wonderful. Hope you have a good team by your side. You’re in my prayers. Love, every blessing Sandra xx

  2. Oh Chris, I really really didnt want to read that news. So sorry mate, rubbish beyond crap but maybe the bloody fear of fighting recurrances and general stomach lurching hope can give way to a peaceful acceptance and time to do just what you want and need to do. Really admire your writing and honesty and whilst I know what goes on behind the words and how much you/we all try to protect our loved ones, now it is time to be a bit selfish. Can’t say much else other than I will be thinking of you and pray the hospital visits die down a bit for heavens sake! Much love from a so far lucky fellow club member and yet again dumstruck by the unfairness of all this shit. Xx

  3. artminx says:

    I saw your post and got excited to see you again, crushing news. Utterly crap. Really looking forward to hearing about Glastonbury. You write so well Chris. Hope the week is pain free and you get plenty of time to do the things you want to do.

    Looking forward to hearing from you again. Xxx

  4. Nick says:

    Hey, I understand your situation, although I am lucky that the chemo is still working for me. I am on palliative chemo, so one day the chemo will stop being effective.
    Keep blogging if you can and my best wishes to you and your loved ones.
    Nick

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s